Hello everyone! My name is Kat Reiher and today I want to discuss a new review that came out a

Lauren and I just got back from the American Epilepsy Society meeting where we met with four biopharma companies running

The holidays are the perfect opportunity to show your appreciation for loved ones with gifts that come from the heart.

As the mother of a young daughter with a rare genetic disorder, I’m constantly looking for ways to contribute to

Welcome to the inaugural edition of our Cure in Progress Report! As the Executive Director of CureGRIN Foundation, I’m thrilled

CureGRIN is incredibly proud to announce $200,000 in new research funding to help us achieve our goal of finding treatments

Welcome to the inaugural edition of our Cure in Progress Report! As the Executive Director of CureGRIN Foundation, I’m thrilled

Are you a researcher interested in accessing GRI gene animal models, patient variant animalmodels, patient-derived induced pluripotent stem cells, and/or

She doesn’t care about the quality of her toys, the designer of her clothes, the car her parents drive, or

Grief caused by the loss of a child is always just under the surface of all our other emotions –

We are beyond thrilled to announce that Stories of GRI e-book and paperback are now available!

One of the mysteries about GRI disorders is why some patients are far more affected than others. It was interesting

The potential treatment also led to clinical improvements in other symptoms, and was well tolerated from a safety perspective.

My name is Kat Reiher, I am the lead Ambassador for CureGRIN, and I wanted to write about Rare Across

In just one week, nearly 150 families representing 10 genes and 16 countries have completed and submitted the GRI Census.

Meet the GRI Researchers Series

Since our founding in 2019, CureGRIN has been working tirelessly alongside researchers, clinicians and industry to accelerate the path to

A recently published clinical trial found that a new treatment, L-serine, appeared to have some positive effects in a small

Since our founding in 2019, CureGRIN has been working tirelessly alongside researchers, clinicians and industry to accelerate the path to

GRIN Book now available on Amazon

Meet the GRIN Researchers Series

CureGRIN Foundation is excited to announce that we are funding five research projects for a total investment of $652,500. The

Researchers at the University of Toronto tested whether repairing a Grin1 mutation in mice can restore cognitive function. In the

Meet the GRIN Researchers Series

Meet the GRIN Researchers Series

Meet the GRIN Researchers Series

We are excited to kickoff our 2nd annual virtual physical family challenge to promote healthy lifestyles while raising money to

By: Meagan Collins You’ve probably heard that GRIN genes contain the DNA code to build NMDA receptors (NMDARs), but what

Several parents in the GRIN community have reported specific non-epileptic events in their children.

Educational primer for the April 2022 virtual GRI Conference

CureGRIN is now an official Platinum member of NORD.

CureGRIN is a member of COMBINEDbrain.

Educational primer for the April 2022 virtual GRI Conference

Educational primer for the April 2022 virtual GRI Conference

One family’s unimaginable loss is providing hope for other GRIN families.

Developmental delays including gross motor, fine motor, vision, and speech are common with GRIN Disorder. Children diagnosed with GRIN Disorder

Every two months, we’ll be sharing updates on the latest publications about GRIN genes, NMDA receptors and other glutamate receptors.

CureGRIN’s end of year report.

Every two months, we’ll be sharing updates on the latest publications about GRIN genes, NMDA receptors and other glutamate receptors.

CureGRIN Foundation is pleased to announce an investment of $75,000 to cover the cost of functional analysis for 50 people

Every two months, we’ll be sharing updates on the latest publications about GRIN genes, NMDA receptors and other glutamate receptors.

We recently asked family members of the GRIN Disorder community about their concerns and challenges with the medical system.

When we become parents of rare disease kids, we’re expected to become everything from physiotherapist to pharmacist overnight. This post

This eight-part series tells the story of Bryson, GRIN Disorder, and Keith’s family’s search for a cure.

Big news! We are thrilled to share that Austin’s Purpose, the first charity to raise funds for GRIN Disorders, will

Searching and Finding at the CFERV Conference on GRIN Variants Parents of children with rare diseases are the ultimate hunters

We recently announced plans to initiate the first clinical study on Radiprodil. Meet the GRIN Therapeutics team here.